TOFS exists to support the families of children, and adults, born with TOF (trachea-oesophageal fistula) and/or OA (oesophageal atresia), and related disorders including the VACTERL association.

TOF (tracheo-oesophageal fistula) and OA (oesophageal atresia) are rare congenital conditions of the oesophagus (food pipe) and/or trachea (airway). Babies born with TOF/OA need to have intensive neo-natal care prior to corrective surgery, mostly within days of birth, but occasionally after a prolonged stay in hospital. After corrective surgery, some children continue to suffer from gastro and respiratory problems.

TOFS facilitates emotional support and information exchange with:
Leaflets, The TOF Child book, Newsletters, Conferences (for both adult TOFs and parents to children), Parties for TOF children and social events for TOF adults, Website (www.tofs.org.uk) with community forum and Facebook Group.

Please support TOFS - we receive no government funding - Donate NOW